“I was 30 and had only been a mom for a few months when the pain started,” Marlos says. “I was very tired and had severe pain in my joints, but I didn’t give in. I don’t ask for help easily, but it got worse and worse.” At a certain point, Marlos could no longer bear the quilt on her body. “The pain I felt then was almost excruciating.”
After the diagnosis, Marlos immediately received a lot of medication. “This is, among other things, to prevent deformities and infections, but the disadvantage is that my resistance has deteriorated due to the heavy medication.” As a result, Marlos sat shivering with fever under a blanket on the couch for a few days every week. “I was sick from the medication, but if I stopped taking it, I would be in so much pain again. I was completely stuck and more alive than alive. And that’s when I should be in the prime of my life.”
Marlos decided things had to be done differently and began looking for ways to control her rheumatism without taking a lot of medications. “It has been a years-long endeavor in which I have experimented with exercise, diets and my sleep rhythm. I have now reached a point where I am doing well and can live well with my disease without medication.
However, Marlos would have liked more information about how an adaptive lifestyle could help control rheumatism. “When I received my diagnosis seven years ago, there was no interest in it. The solution then was to take a lot of medication.” So Marloes wants to help other rheumatology patients. “I want to give others the tools that I myself lacked.” Marloes will, Among other things, by supervising the new platform Reuma.nl. “This means helping with questions and helping people on their way.”
In case of physical or mental complaints, always consult a doctor first.
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